A VERY BLUE STORY
Hey everyone! Blue here!
Today I want to shed light to a topic that is not that much discussed. Our channel and blog is a gateway for Red and I to make new stuff and be inspired. Our channel is a way to express ourselves and we really enjoy making new content. I am a very open person about my conditions and my life here on our blog and our YouTube channel, so I thought that I would tell you my story.
Ever since I was a kid I have been sick a lot, and by that I mean A LOT. I was always the first one in our family to get sick, and I have always been sick every few months. It is a vicious cycle. I remember having headaches quite often, and because of those I've had glasses since I was 14 years old. Still my headaches never fully disappeared. I have always kinda known there was something a bit off, that there was something wrong with me.
I am a very happy person, very social and I like hanging out with my friends and going out. I like studying and I am very interested in the profession that I study. I used to work a lot before I got accepted into my school over a year ago.
My life came crumbling down last spring.
It all started from one finger. It was my left middle finger that just started hurting one Wednesday evening. I went to the doctor the next day and apparently everything was fine. They gave me painkillers and sent me off to school. In a few days the pain had "spread" to both of my hands, all of my fingers and my wrists were hurting. I called the doctor and went in again. The joints in my hands looked okay from the outside. There was no redness or inflammation, nothing. I went to a blood test and continued my life with taking paracetamol every day, three times a day for two weeks.
All of the blood tests came in normal. I did three or four different tests, which all took a week to get a result, and everything came our normal. My pain had gotten worse again, only then it had "spread" to my legs too. I had chronic pain in the joints of my limbs, I experienced fatigue, headaches, I couldn't sleep... the list is long. Colder weather and sauna made my pain worse. So, I took an extended sick leave from school, did all of my school work from home. Luckily I had resigned my job month prior to my heath problems.
I started feeling anxious and sad not knowing what was wrong with me. I kept going to the same doctor for six months and she did the same things every time I went to see her: she asked what joints were hurting, how much painkillers I've been taking, results came in normal, I don't know what is wrong with you. She tried to get me an experienced doctor from a hospital to get me checked but they denied me.
I spent most of my summer indoors studying and angry. I was mad, because our Finnish public healthcare system had failed me. I was on my way to a downwards spiral. But there was still hope in the end of the tunnel.
October 11th 2017 I finally went to see a new doctor, a private doctor. My insurance didn't cover it, I paid for it all by myself and that was a huge amount of money well spent. Best money I have ever spent.
On October 11th 2017 I was diagnosed with fibromyalgia, connective tissue abnormality and hypermobility -syndrome. I am on new medication and have more knowledge and helping hands to get me better. I am back at school, I have a new job and life is going well, except I am sick, again :D. I am constantly looking for new ways to help with the pain, which still is a big part of my life.
I am doing so much better now that I did six months ago.
Peace and love,
Blue
Today I want to shed light to a topic that is not that much discussed. Our channel and blog is a gateway for Red and I to make new stuff and be inspired. Our channel is a way to express ourselves and we really enjoy making new content. I am a very open person about my conditions and my life here on our blog and our YouTube channel, so I thought that I would tell you my story.
Ever since I was a kid I have been sick a lot, and by that I mean A LOT. I was always the first one in our family to get sick, and I have always been sick every few months. It is a vicious cycle. I remember having headaches quite often, and because of those I've had glasses since I was 14 years old. Still my headaches never fully disappeared. I have always kinda known there was something a bit off, that there was something wrong with me.
I am a very happy person, very social and I like hanging out with my friends and going out. I like studying and I am very interested in the profession that I study. I used to work a lot before I got accepted into my school over a year ago.
My life came crumbling down last spring.
It all started from one finger. It was my left middle finger that just started hurting one Wednesday evening. I went to the doctor the next day and apparently everything was fine. They gave me painkillers and sent me off to school. In a few days the pain had "spread" to both of my hands, all of my fingers and my wrists were hurting. I called the doctor and went in again. The joints in my hands looked okay from the outside. There was no redness or inflammation, nothing. I went to a blood test and continued my life with taking paracetamol every day, three times a day for two weeks.
All of the blood tests came in normal. I did three or four different tests, which all took a week to get a result, and everything came our normal. My pain had gotten worse again, only then it had "spread" to my legs too. I had chronic pain in the joints of my limbs, I experienced fatigue, headaches, I couldn't sleep... the list is long. Colder weather and sauna made my pain worse. So, I took an extended sick leave from school, did all of my school work from home. Luckily I had resigned my job month prior to my heath problems.
I started feeling anxious and sad not knowing what was wrong with me. I kept going to the same doctor for six months and she did the same things every time I went to see her: she asked what joints were hurting, how much painkillers I've been taking, results came in normal, I don't know what is wrong with you. She tried to get me an experienced doctor from a hospital to get me checked but they denied me.
I spent most of my summer indoors studying and angry. I was mad, because our Finnish public healthcare system had failed me. I was on my way to a downwards spiral. But there was still hope in the end of the tunnel.
October 11th 2017 I finally went to see a new doctor, a private doctor. My insurance didn't cover it, I paid for it all by myself and that was a huge amount of money well spent. Best money I have ever spent.
On October 11th 2017 I was diagnosed with fibromyalgia, connective tissue abnormality and hypermobility -syndrome. I am on new medication and have more knowledge and helping hands to get me better. I am back at school, I have a new job and life is going well, except I am sick, again :D. I am constantly looking for new ways to help with the pain, which still is a big part of my life.
I am doing so much better now that I did six months ago.
Peace and love,
Blue
(Pictures from my trip to Italy this fall, one is from tumblr.)
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